Goverment Programs for Medicare

Caregivers

New to Our SiteYour Discharge Planning Checklist
A checklist for patients and their caregivers who are getting ready to leave a hospital, nursing home, or other health care setting. Includes a list of contact information for Area Agencies on Aging, State Health Insurance Assistance Programs and long-term care offices. This link opens a PDF document.


…A Toolkit for Serving Diverse Communities
This toolkit provides Aging Agencies and their partners with an easy-to-use method that can be used for providing respectful, inclusive and sensitive services for any diverse community. The toolkit consists of a four-step process and a questionnaire to help professionals, volunteers and grassroots advocates with every stage of program planning, implementation and service delivery for older adult communities, their families and caregivers. This link opens a 134 page PDF document.

…ALS Association Information for Patients, Families & Caregivers
Information to help inform and support people living with amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's disease," and their families and caregivers.

…ARCH National Respite Locator Service
Helps parents, caregivers and professionals find respite services in their state and local area to match their specific needs. Respite is temporary relief for caregivers and families who are caring for people with disabilities, chronic or terminal illnesses and the elderly.
Alzheimer's Caregiver Guide
Publication from the National Institute on Aging offers tips and resources on topics including dealing with diagnosis, choosing a nursing home and at home care. This guide is also available in Spanish.

Web site from the National Institute on Aging helps you find current, comprehensive Alzheimer's disease information and resources.

(…An Employer's Guide to Child & Adolescent Mental Health
Child and adolescent mental health disorders can have a significant impact on family members, caregivers and the workplace. Parent caregivers are much more likely to experience work absences and even loss of a job as a result. This guide was developed to help employers improve the delivery of child and adolescent behavioral health services, as well as provide services for family caregivers. This link opens a PDF document.
Medicare Caregiver Initiative
Provides information, tools and materials to assist the caregiver and their loved ones in making informed health care decisions.
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Provides information on different kinds of brain injuries, both traumatic and acquired, including signs and symptoms, stages of living with brain injury, questions to ask medical professionals, information about long-term care and provisions of the Americans with Disabilities Act that may apply to people living with brain injuries. This link opens a PDF document.

The Centers for Medicare & Medicaid Services (CMS) launched Ask Medicare, to help family caregivers access valuable health care information, services and resources.

Caregivers & The Flu
Provides information for caregivers on special precautions to take when caring for a sick person at home, especially if the person is an infant or child. Includes information on medications, people at high risk for complications, how to protect other people in the home, as well as yourself, while caring for others.

…Caregiving Across the States
Information on caregiver support programs in each of the 50 states and the District of Columbia.
…Caregiving in the U.S. 2009
This report prepared by the National Alliance for Caregiving in collaboration with AARP, describes several important findings about caregiving and caregivers, including the fact that caregivers and care recipients continue to be predominately female (66%); among caregivers age 18 and older, the average age of today's caregiver is 49, and the average age of a care recipient is 69; approximately three-fourths of caregivers have worked while caregiving, and there has been an increase in the proportion who say they have had to make a workplace accommodation because of caregiving. The complete report can be downloaded in PDF format.

…Caring for Alzheimer's
Information and resources for caregivers of people living with Alzheimer's disease.
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Caring for a Person with Alzheimer's Disease
This guide is for people who care for family members or others with Alzheimer's disease (AD) at home. Includes information about how AD changes a person; coping with these changes; helping family and friends understand AD; making your home safe for the person with AD; and managing everyday activities like eating, bathing, dressing, and grooming. Information on this subject is also available in Spanish. These links open PDF documents.

…Children with Diabetes
Information about juvenile diabetes and support for parents and children with diabetes.
…Christopher & Dana Reeve Paralysis Resource Center Caregiver Information
Information and links to resources for caregivers of people with paralysis.
…DaVita Patient Citizens
DPC is an independent, nationwide, non-profit, patient-governed dialysis patient organization dedicated to improving dialysis patients' quality of life by developing awareness of dialysis-related issues, advocating for dialysis and pre-dialysis patients, improving the partnership between patients and caregivers and promoting favorable public policy.
…Developing a Care Plan
Describes ways to assess when a loved one needs outside care. It covers developing a care plan, organizing important documents and what you can do to give support. This link opens a PDF document.
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Nationwide database of Aging Network agencies available to help older adults with disabilities and their family caregivers access needed services and support.

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Offers state-by-state help for family caregivers. Includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and much more.
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Provides caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for their loved one. Includes information on how to find help for caregivers - from financial assistance to home care to respite care.

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Information from the FDIC on insurance coverage for accounts you are managing as a caregiver.
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Advice from the Federal Deposit Insurance Corporation (FDIC) on how to prevent and deal with potential money problems when loved ones are ill.
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More than seven million people who get monthly Social Security or Supplemental Security Income (SSI) benefits need help managing their money. This booklet explains the responsibilities of a representative payee, and the importance of knowing what the beneficiary's needs are so you can decide how benefits can best be used for his or her personal care and well-being.
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Booklet examines topics such as how to find and compare nursing homes, nursing home resident rights and where to call for help. This link opens a PDF document.
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HealthCare.gov lets consumers take control of their health care by connecting them to information about quality, affordable health care coverage. HealthCare.gov is a database of health coverage options--from Medicare to the Pre-Existing Conditions Insurance Plan, and information from more than 1,000 private insurance plans. HealthCare.gov answers questions that relate to people with disabilities and health care, and also has information about insurance plans and community services in every state. Take a video tour of this website.

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The U.S. Department of Health and Human Services' Administration on Aging (AoA) recommends a three-step approach in the planning for emergencies or disasters: 1) Know the basics; 2) Have your emergency supplies ready; and 3) Make a personal plan. Includes an emergency preparedness checklist. This link opens a PDF document.

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Non-profit news organization provides in-depth information and updates on issues related to health care policy.
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Letter from CMS Director Cindy Mann describing efforts to implement solutions that address barriers to community living for individuals with disabilities and older Americans. This link opens a PDF document.
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This official federal government handbook on Medicare contains important information about Medicare costs; What Medicare covers; Health and prescription drug plans; Your Medicare rights; and Health information technology. This link opens a PDF document.
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The National Institute of Health's guide for Medicare basics for caregivers.
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Provides information related to the health and care of a person with Medicare, including planning for future health care decisions, navigating Medicare, health care choices and billing. This link opens a PDF document.
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The Centers for Medicare & Medicaid Services (CMS) has proposed new rules for hospitals that would protect patients' rights to choose their own visitors during a hospital stay, including visitors who are same-sex domestic partners. The proposed rules would require every hospital to have written policies and procedures about patients' visitation rights, as well as instances when the hospital may restrict patient access to visitors based on reasonable clinical needs.
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Provides support to family caregivers and the professionals who help them. The National Alliance for Caregiving has publications on a variety of topics including Care for the Family Caregiver: A Place to Start and A Family Caregiver's Guide to Hospital Discharge Planning, also available in Spanish. These links open PDF documents.

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Provides support to physicians, families and other medical and non-medical providers who care for children with special needs so that they have access to a medical home.

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Supports efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity.
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Resources for families, caregivers and professionals including where to find support, assistance and services.
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Supports, empowers, educates and speaks up for the more than 50 million Americans who care for a chronically ill, aged or disabled loved one.
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Find an advocate for residents of nursing homes, board and care homes and assisted living facilities. Ombudsmen provide information about how to find a facility and what to do to get quality care. They are trained to resolve problems.
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An online directory that offers resources and information to help wounded warriors, their families and those who serve them as they transition back to civilian life.
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Provides detailed information on health plans, nursing homes, Medigap policies, contacts and Medicare.

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Non-profit organization helps people find assistance with prescription drug costs. Web site offers free access to discount drug cards and coupons, cash discounts, copay programs and manufacturers free prescription drug programs.
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Caregivers provide help for people who can't fully care for themselves, whether it's by cooking meals, paying bills or helping them get clean and dressed. Caregivers should be aware of some of the warning signs of physical and emotional stress.
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Links to information on support services, caregiving organizations, care homes, special needs trusts and more.
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President Obama has asked the Secretary of Health & Human Services (HHS) to initiate appropriate rulemaking to ensure that hospitals that participate in Medicare or Medicaid respect the rights of patients to designate visitors. The President stated that it should be made clear that participating hospitals may not deny visitation privileges on the basis of race, color, national origin, religion, sex, sexual orientation, gender identity or disability. The President has also asked that he be provided with additional recommendations on actions HHS can take to address hospital visitation, medical decision-making, or other health care issues that affect LGBT patients and their families.
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Fact sheet regarding respite care, temporary care provided to people with disabilities in order that their families can take a break from the daily routine of caregiving. Document is in Word format.
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The Chapel-Hill Training Outreach Project provides links to all state respite coalitions. These organizations provide temporary relief for caregivers and families who are caring for people with disabilities or chronic and terminal illnesses.
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Learn about the CLASS Act, the Community First Choice Option and other provisions of the health reform legislation that will help family caregivers and their loved ones.
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Information from the Centers for Disease Control & Prevention (CDC) on H1N1 (swine flu) and steps you can take to protect your family and those you care for and when to seek medical care.

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Links to many resources, including information on eldercare, long-distance caregiving and federal benefits programs.
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Offers a peer-to-peer support for the spouses and partners of people who are chronically ill or who have a disability. Find a support group in your state.

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Fact sheet explains what adult day care is, how centers operate and what to look for in an adult day care center.
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